Pharma & Life Sciences
World Orphan Drug Congress Europe 2026
The essentials
Event details
- Dates
- 27 October 2026 to 28 October 2026
- Organiser
- Terrapinn
- Expected attendance
- 2,973
- Industry
- Pharma & Life Sciences
Public discussion
What people are saying
Official hashtag #worldorphandrugcongress
- PressWorld Orphan Drug Congress Europe 2026 - Amsterdam, Netherlands
World Orphan Drug Congress Europe 2026 in Amsterdam, Netherlands, is a leading healthcare and pharmaceutical event focused on rare disease treatments, orphan drug development, clinical research, and innovative solutions connecting industry
- PressWorld Orphan Drug Congress Europe 2026 - IRDiRC
The International Rare Diseases Research Consortium will be at the forefront of discussions at World Orphan Drug Congress Europe 2026, highlighting innovations in rare disease research, personalized therapies, and sustainable approaches to
Agenda themes
Topics covered
- Drug
On stage
Speakers
- Alexander NatzSecretary General, EUCOPE - European Confederation of Pharmaceutical Entrepreneurs
- Clara van KarnebeekAmsterdam UMC, Amsterdam NL
- Fabienne BartoliInspector General, French National Authority for Health
- Stine Bosse
- Niklas HedbergHead Of Pharmacy, Tandvards och Lakemedelsformansverket
- Kaja Kantorska
- Jonathan NealTakeda
- Francesc PalauDistinguished Investigator
- Violeta Stoyanova-Beninska
- Derek AnselVice President, Therapeutic Strategy Lead, Rare Disease, Worldwide Clinical Trials
- Lara Bloom
- Peter FasslerDirector Market Access, Gilead Sciences
- Josie GodfreyVice President, Market Access & Pricing, Europe and International, Ascendis Pharma
- Ron JortnerFounder & CEO, Aspire Biosciences
- Daria JulkowskaHead of Strategy & Partnerships in Health, ERDERA - INSERM
- Paolo MorgeseVice President, Public Affairs, Europe, Alliance for Regenerative Medicine
- Josephine MossetSenior Policy Officer, Cancer Patients Europe
- Frauke Naumann-WinterHead of Unit, BfArM
- Maurizio ScarpaDirector, Coordinating Center For Rare Diseases, MetabERN
- Lydia Shotton
- Wieteke WoutersProgramme Director, hollandbio
- Kwee Lan TANHead of team, Boehringer Ingelheim
- Veronica Lopez GoussetDrPH candidate, Harvard T.H. Chan School of Public Health
- Viviana GiannuzziSenior Director, Head of Europe Global Regulatory & Scientific, Merck
On the floor
Sponsors and partners
- CENTOGENE GmbH
- Staatz Consulting
- Chiesi Global Rare Diseases
- ICON Clinical Research Ltd
- OXON EPIDEMIOLOGY
- PrimeVigilance
- RTI Health Solutions
- PANTHERx Rare
- Premier Research
- SGS Integrated CDMO Solutions
- subrosa Health & Capital
- Norgine
- Sciensus Pharma Services Limited
- York Health Economics Consortium
- Alchemist Consulting Ltd
- Genontech Digital Health Solutions Ltd
- Innvocept Global Solutions
- ERDERA
- FH Europe Foundation NGO
- RARE Revolution
- ODDIFACT
- Infirmacea Inc
- NIXI DESIGN FOR HEALTH SL
- Olavide Neuron STX (ONESTX)
Logistics
Where to stay
Places to stay near the venue.
Swissôtel ★★★★
96 Damrak, Amsterdam
De Roode Leeuw ★★★★
93-94 Damrak, Amsterdam
Anantara Grand Hotel Krasnapolsky ★★★★★
9 Dam, Amsterdam
Cordial
INK Hotel Amsterdam
67 Nieuwezijds Voorburgwal, Amsterdam
Hotel Rokin
73 Rokin, Amsterdam
The Highlander
100 Nieuwezijds Voorburgwal, Amsterdam
The Grand ★★★★★
197 Oudezijds Voorburgwal, Amsterdam
Plan this event
Work out who to meet here
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